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Channel: Lifeline blog - Great Ormond Street Hospital Children's Charity » patients
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Ultra proud to be running for GOSH

My kit is sorted, the race bag is almost packed and I’m just about ready to make my mark at this year’s Royal Parks Foundation Ultra, 50km (31 miles) of multi-terrain trails around the great city of...

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Patients and staff celebrate National Play in Hospital Week

The Lagoon Restaurant at Great Ormond Street Hospital (GOSH) was filled with excitement last week as patients and Play Specialists celebrated National Play in Hospital Week. The Week, organised by the...

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Living with argininosuccinic aciduria

Olivia was born with a rare urea cycle disorder, which was poisoning her body. A fast diagnosis and treatment at Great Ormond Street Hospital (GOSH) saved her life. Mum Emma tells her story. Olivia was...

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Research proves lullabies really do help children feel better

A study of children at Great Ormond Street Hospital (GOSH) has scientifically proven what parents have suspected for centuries – that lullabies really do help to soothe poorly children and reduce...

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Back to normality

After bowel, bladder and kidney problems then a fast-growing tumour, a rare immune deficiency started to explain it all for George and his family. For his first few years of life, George was a healthy...

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Coping with cystic fibrosis

Fifteen-year-old Matthew was diagnosed with cystic fibrosis when he was four. Matthew and his mum Allison and tell us about coping with the condition. Allison says: “Matthew was diagnosed with cystic...

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Abdominal surgery at GOSH 100 years ago, 50 years ago and today

Fred, Hilary and Meila have all had abdominal surgery at Great Ormond Street Hospital (GOSH) over the last 100 years. Read their stories and find out how you can help more patients like Meila (pictured...

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Immunology patients enjoy a fun day at the Transport Museum

On 12 October primary immunodeficiency patients from Great Ormond Street Hospital (GOSH) enjoyed their first ‘Patient Fun Day’ at the London Transport Museum. The event, organised by hospital staff,...

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10 images that inspired us in 2013

Great Ormond Street Hospital (GOSH) patients, staff, researchers, families and charity supporters inspire us daily. Here is a selection of our favourite and most inspiring images from 2013. GOSH...

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Five patients who inspired us in 2013

We’re inspired daily by the incredible stories of Great Ormond Street Hospital patients and their families. Thank you to everyone who has shared their story with us this year.   Charlie Charlie was...

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Great Ormond Street Hospital patients get a pizza masterclass with ASK...

Earlier this week patients from Great Ormond Street Hospital enjoyed a special culinary treat with world-class Italian chef Theo Randall, when they took part in a fun pizza making class to celebrate...

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Make a difference this Christmas with a message for Great Ormond Street...

Every year Great Ormond Street Hospital Children’s Charity asks for Christmas messages from fundraisers and supporters, as part of our Christmas Stocking Appeal. Visit our site to design your very own...

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Christianne’s Christmas at Great Ormond Street Hospital

On 5th October 2011, at only six weeks old, baby Christianne had an ultrasound on her abdomen at her local hospital and it was discovered she had a tumour in her adrenal gland. Unfortunately the tumour...

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Gabi gets home for Christmas

As far as her parents Justyna and Maciej could tell, Gabriela was a healthy baby. Her first few months were no different to those of any newborn. But just as things started getting easier for the...

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An enchanting night for patients and supporters at our annual Christmas Carol...

Earlier this week over 700 guests attended the Great Ormond Street Hospital Children’s Charity Christmas Carol Concert at the beautiful Victorian setting of St Paul’s Church, Knightsbridge. The carol...

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My son Austin’s bone marrow transplant

My son Austin was diagnosed in August 2009 with Wiskott Aldrich Syndrome – a Primary Immunodeficiency Disease – the only cure for which was a bone marrow transplant. While the bone marrow registers...

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Louis and Marni report back from our Christmas parties

Seven-year- old Great Ormond Street Hospital patient Louis attended the 2012 Christmas party with his brother Buster and their mum. He wrote us this note afterwards. I really liked it! First I played...

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Me and my boy

We already had two daughters, but Ellis was our first boy. As a dad, and the only man in the house, I was really looking forward to his arrival. He was born by emergency caesarean at St John’s Hospital...

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Lewis’s inspiring story

Lewis, 19, missed out on a big chunk of his education due to epilepsy. But now, after a major operation, he’s back at college. In 2007, aged 14, Lewis had a seizure while on holiday in Spain. He was...

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GOSH patients get to play a big role at their heroes’ rugby match

Harlequins rugby team chose Great Ormond Street Hospital Children’s Charity as their official charity partner for their Big Game 5 match against London Irish at Twickenham on Saturday 29 December. The...

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I have MMA

Sixteen-year-old Oliver has been coming to Great Ormond Street Hospital since he was 12 months old. He tells us why. I have never known what it’s like to live without MMA (methylmalonic acidemia). Mum...

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Meet the team: Robin Ward

Robin Ward is a specialised ward for children with immune problems who need protection from infection, and also for children affected by infectious diseases who need isolation. Meet some of the team...

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Making Enda better

Kiss it Better is an initiative to raise money for research into the causes and treatment of childhood cancer – the biggest disease affecting children today. Six-year-old Enda spent a significant...

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Fundraising for Great Ormond Street Hospital over 100 years ago

The Hospital for Sick Children, known today as Great Ormond Street Hospital (GOSH), opened in 1852 with just 10 beds. It had ambitions to expand and, in the days long before the NHS and central...

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Researchers find gene responsible for rare condition that can lead to melanomas

The genetic cause of a rare condition, which causes large moles to grow on the skin and brain before birth and which increases the risk of melanoma, has finally been identified in a study led by Dr...

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Keeping a positive attitude

Michelle, 28, was admitted to Great Ormond Street Hospital as a child after being diagnosed with juvenile idiopathic arthritis. I was eight when I first developed a stiff neck – I was playing outside...

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A masterclass in putting on plays for hospital school pupils

Patients at the Great Ormond Street Hospital School were recently treated to a six week programme of Peter Pan workshops run by the Theatre Royal Haymarket Masterclass Trust charity, thanks to two long...

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“Frequent Flyer” cystic fibrosis patients spend less time in hospital

A programme offering physiotherapy, dietary support and personal training sessions to children with cystic fibrosis, was found to reduce the time spent in hospital receiving antibiotics and boost...

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Surviving against the odds

At 7am on New Year’s Eve I was changing my daughter Jasmine’s nappy when I noticed a tiny spot no bigger than a pinhead just above her nappy line. At six weeks, a baby’s skin is so perfect – there...

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Nominate someone special for the Great Ormond Street Hospital staff awards 2013

Every year at Great Ormond Street Hospital (GOSH), an awards ceremony takes place to thank medical teams and individual staff members for their outstanding work. If one person – or a team – made your...

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Snapshot of a Great Ormond Street Hospital ward: past and present

An important part of our vision at Great Ormond Street Hospital is to provide state-of-the-art facilities for our patients and staff. In this blog we compare the wards in the Morgan Stanley Clinical...

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Milan’s Race for the Kids

Milan’s Mum Harpreet describes Milan’s time at Great Ormond Street Hospital (GOSH) and how taking part in Race for the Kids last year was their way of saying thank you. Milan started having severe...

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I have Tourette’s

Tonight on ITV at 9pm Kids with Tourette’s – In Their Own Words follows Great Ormond Street Hospital patients Callum, Connor and Marco through six months of treatment as they are taught strategies to...

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Transplant patients get a snowy week of fun

In early March this year, four organ transplant patients who were treated at Great Ormond Street Hospital (GOSH) went for a week of skiing and fun in the snowy mountains of Switzerland. Liridona,...

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Giving Mia a future

Five-year-old Mia was born with a rare abdominal wall defect called exomphalos. Her mum, Amy, talks about the first months of her life, which were spent at Great Ormond Street Hospital (GOSH)...

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A GOSHI Moshi Monster day for patients Luke and Jenna

A group of Great Ormond Street Hospital (GOSH) patients, including siblings Luke and Jenna, had a very special treat recently with a visit to the Moshi Monsters HQ. Six-year-old GOSH patient Luke had a...

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The key to helping Chantelle

When Chantelle developed a major problem with her oesophagus, only an amazing operation at Great Ormond Street Hospital using keyhole surgery could help. One day in April 2011, when Chantelle was...

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Dr Khalid Hussain and the Hyperinsulinism team win the Child and Family Award...

The Great Ormond Street Hospital (GOSH) annual staff awards celebrate the people that make the hospital great. A wide range of awards are presented to deserving staff members, but the Child and Family...

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Callum’s pirate adventure

Great Ormond Street Hospital patients and their families were guests of honour at a star-studded charity premiere of the Pirates Adventure Show in Majorca which raised vital funds for Great Ormond...

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Why our whole family is doing Tri for Life

Eight-year-old Jessica was diagnosed with a brain tumour when she was almost three. Her mum Annabel talks about the life-saving treatment Jessica received at Great Ormond Street Hospital (GOSH), and...

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Becoming independent

Three Great Ormond Street Hospital patients helped us produce a short film recently to support patients moving from the hospital to adult services. We spoke to one of the patients, Adam, and found out...

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Mike and Sulley bring monstrous fun to patients at Great Ormond Street...

Excitement filled the hospital air on Thursday when the Great Ormond Street Hospital restaurant, The Lagoon, was transformed beyond recognition into the venue for a mini-premiere and special screening...

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Teaching patients to cope with having their blood taken

GO Create! is an arts programme funded by Great Ormond Street Hospital Children’s Charity. In conjunction with Roald Dahl’s Marvellous Children’s Charity and the Burdett Trust for Nursing, the team...

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Giving Charlie the chance of a normal life

With just months to live, a new operation at Great Ormond Street Hospital (GOSH) changed everything for Charlie and his family. When Charlie was born at Walsgrave Hospital he wasn’t breathing properly....

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Patients get to “Breathe Magic”

GO Create! is an arts programme funded by Great Ormond Street Hospital Children’s Charity. Each year, the programme invites an artist to a creative residency at Great Ormond Street Hospital (GOSH),...

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Being a teenager at Great Ormond Street Hospital

Three Great Ormond Street Hospital patients helped us produce a short film recently to support patients moving from the hospital to adult services. Jack is 13 years old and told us about being a...

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Staying involved

22-year-old Mat and his dad Hubert are both members of the Great Ormond Street Hospital Foundation Trust. They told us Mat’s story and why they wanted to stay involved with the hospital. Mat’s story in...

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Learning to manage my Tourette’s

13-year-old Charlie has been coming to Great Ormond Street Hospital (GOSH) since March 2012 to receive support for his Tourette syndrome. Tourette syndrome is a neurological condition (it affects the...

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Joshua’s clinical trial

Fifteen-year-old Joshua has Duchenne muscular dystrophy (DMD), a genetic condition which causes muscle weakness due to the breakdown and loss of muscle cells. Joshua and his mum, Zeena, tell us about...

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Back-to-school photos from Great Ormond Street Hospital patients

We asked current and former Great Ormond Street Hospital patients to share their back-to-school photos and were overwhelmed by the response. Here are just a few of the photos that were shared....

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